Connecting With Other Chemotherapy Patients and Caregivers
Being able to talk to someone who has been through a similar experience is very
beneficial. Seeking the support of others provides an opportunity to discuss
problems, seek information, share ideas, and learn how to cope and adapt to the
outcomes and changes they caused.1 Eighty-four percent of cancer patients report that
they felt they needed, but were unable to find, several specific types of help
at the time of their cancer diagnosis, including:2
- Information on what they or their loved ones might experience
- Talking to other people who had cancer
- Being able to connect with someone else who had been through a similar experience
Caregivers Have Needs Too
The demands on caregivers can be great. In fact, nearly 40% of the 150 cancer patients surveyed said that their primary caregiver spent more than 4 days per week assisting them with medical care. Patients said their caregivers helped them with a variety of activities, such as:2
- Providing emotional support (88%)
- Talking to the doctor (79%)
- Helping them make treatment decisions (73%)
- Seeking out information regarding their cancer and chemotherapy (67%)
While being attentive to your loved one’s needs, you must also ensure you meet your own individual needs. By maintaining your emotional and physical well-being, you will improve your ability to assist you loved one. Build in time for regular exercise, meditation or some other form of relaxation. Take advantage of offers from friends and family to run errands, prepare meals and assist with life’s daily needs. Seek the support of a caregiver who has been there and can provide emotional support, encouragement, and understanding.3
Please refer to the information on this website regarding the Voices of Experience Network to find out how you can be matched with a caregiver who has been through a similar experience.
Looking Ahead
As overwhelming and stressful as your current situation may be, you play a critical role in your loved one’s life.1 Please take advantage of the resources ranging from Internet websites to books to support groups to help you and your loved one better understand the difficult road ahead of you. Use these resources to look beyond the diagnosis, cope with treatments and possible side effects, and continue living a full and enjoyable life.
Any information you receive from this website or in speaking with a support volunteer is not meant to replace care and advice from your loved one’s medical team. Use this information to help you discuss any questions or concerns you might have with your medical team.
1. Taking time: support for people with cancer. National Cancer Institute website. http://www.cancer.gov/cancertopics/takingtime/allpages. Accessed July 2, 2010.
2. Data on file, Amgen.
3. Caring for the caregiver. National Cancer Institute website. http://www.cancer.gov/cancertopics/caring—for—the—caregiver/allpages. Accessed July 2, 2010.
Understanding Cancer –
Chemotherapy Side Effects –
Treating Cancer in Other Ways
Tracking Your Test Results –
Understanding Insurance and Tax Issues
Chemotherapy Resources and Organizations –
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Talk to your doctor before you start strong chemotherapy to learn about helping protect against infection, a potential serious side-effect of strong chemotherapy.
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